Tell us about your diagnosis
Stage 3, lobular cancer
What was your first thought when diagnosed?
They wanted to do a surgical biopsy in 3-4 weeks. I said nope. Cancer or not, I want this out as soon as possible.
Tell us about your journey
In August, 2001, my husband had a heart attack, so he had to retire. I said if we can sell our house I will take early retirement. We sold our house and most of our stuff, moved into our motorhome to set out exploring our country. I went to give blood as usual, and they said there was something going on and they couldn’t use my blood this time. Then I went to the doctor in December 2001 for a full physical before we took off. They found “something” on a mammogram and requested I come in for a more sophisticated test. I did, and we hit the road. The doctor that performed the new test called me on the first Sunday in January and said I have to tell you, you have what appears to be cancer. We immediately pulled off the road, went to the first campground I could find and I got on the internet. The next day, we went to see the doctor. They wanted to do a surgical biopsy in 3-4 weeks. I said nope. Cancer or not, I want this out as soon as possible. In 10 days I underwent the first surgery. It was stage 3, lobular cancer. I went back for 2 more surgeries, one to get a clear margin, the other to put in the port for chemo. The day my Aunt died of breast cancer, I began my first round of chemo. It was rough, I got pneumonia, they had to stop chemo, get me better and begin again. I took 3 rounds of chemo. Then I began my 33 days of radiation. It took a year and a half to complete all my treatments. They left the catheter port in for 5 years, they were so sure the cancer would return. We traveled, but returned every 3 months for tests and to clean the catheter port. I took arimidex for 5 years, the gold standard at that time, then another drug (can’t remember the name) for 3 more years. Finally I graduated to an exam every 6 months, and at 12 years, I only had a yearly exam. I am cancer free now, call it remission or what ever you want, I call it done.